Processing of Personal Data

The Danish National Center for Ethics, along with its affiliated institutions, processes the information you provide us in accordance with applicable regulations. We are aware that your information must be handled with respect for the confidentiality of the information and your privacy. On this page, you can learn more about our processing of your personal data and your rights.

Information about the Data Controller and Data Protection Officer

The Danish National Center for Ethics
Ørestads Boulevard 5
2300 Copenhagen S
Denmark
CVR: 11806619

Data Protection Officer: Helle Ginnerup-Nielsen, databeskyttelse@sum.dk

Data Protection Assistant: Kathrine Paulsen, kpa@dketik.dk

Behandling af personoplysninger i NVK og VMK

Purposes of Processing Your Personal Data

We process your personal data for the following purposes:

  • To be able to respond to your inquiry.
  • To be able to inform you about the work of the Danish National Committee on Health Research Ethics.
  • To be able to handle your possible registrations for events.

Legal Basis for Processing Your Personal Data

The legal basis for our processing of personal data is outlined in:

  • Article 6(1)(b) and (e) of the General Data Protection Regulation.
  • Article 9(2)(f) of the General Data Protection Regulation.
  • Section 11(1) of the Danish Data Protection Act.

Storage of Your Personal Data

If your personal data is stored in our electronic case and document management system, it will be deleted no later than 10 years after the end of the journal period in which the information was received and processed.

Your Rights

Under the General Data Protection Regulation, you have several rights regarding our processing of information about you.

If you request access to information about you that we process, be prepared that we may ask you to contact us via borger.dk. This ensures that we disclose the information to the correct person.

Right to Access Information

You have the right to access the information that we process about you and a number of additional pieces of information.

Right to Rectification

You have the right to have incorrect information about yourself corrected.

Right to Erasure

In very specific cases, you have the right to have information about you deleted before the time of our regular general deletion occurs.

Right to Restriction of Processing

In certain cases, you have the right to have the processing of your personal data restricted. If you are entitled to restriction of processing, we may only process the information - apart from storage - with your consent, or for the establishment, exercise or defense of legal claims, or to protect a person or important public interests. It is noted in this context that archival purposes are considered important public interests.

Right to Object

In certain cases, you have the right to object to our otherwise lawful processing of your personal data.

Read more about your rights at The Danish Data Protection Agency

Read below how we process your personal data in specific situations:

When you report a project to The National Committee on Health Research Ethics

The National Committee on Health Research Ethics (NVK) is obligated under the General Data Protection Regulation to inform you about which information the committee processes about you in connection with the handling of your case. Read in the PDF how we process information in connection with the reporting of projects.

Information about the processing of personal data in NVK (PDF)

When you write to us

If you contact us via email, we will primarily receive information about your name and email address, as well as any information you may include in the email. We encourage everyone to use secure mail with NemID via borger.dk or virk.dk if the inquiry contains sensitive personal information. Information you send to us in an email is used solely to respond to your inquiry.

Contact

 

When you subscribe to the newsletter

You have the option to subscribe to our newsletter, where we inform about our work and activities. At registration, we ask for details about your email address and possibly name. These details are used exclusively in connection with the newsletter. If you no longer wish to receive the newsletter, you can unsubscribe by using the 'unsubscribe' link in the latest newsletter or by sending a message to us via borger.dk. Then your details will be deleted.

Services on social media

Our website may contain social media features such as LinkedIn and Vimeo videos, which have their own privacy policies. We therefore encourage you to read their terms and conditions as well as privacy policy carefully before you submit any personal information. Thus, you should be aware that these media may register your personal information when you click through to these services from this page.

Purpose of Processing Your Personal Data

We process your personal data for the following purposes:

  • To be able to respond to your inquiry
  • To be able to inform you about the work of the Medicinal Research Ethics Committees
  • To be able to handle your possible registrations for events

Legal Basis for Processing Your Personal Data

The legal basis for our processing of personal data is outlined in:

  • Article 6(1)(b) and (e) of the General Data Protection Regulation.
  • Article 9(2)(f) of the General Data Protection Regulation.
  • Section 11(1) of the Danish Data Protection Act.

Storage of Your Personal Data

If your personal data is stored in our electronic case and document management system, it will be deleted no later than 10 years after the end of the record period in which the information was received and processed.

Your Rights

Under the General Data Protection Regulation, you have a number of rights regarding our processing of information about you.

If you request access to information about you that we process, be prepared that we may ask you to contact us via borger.dk. This ensures that we provide the information to the right person.

Right to Access Information

You have the right to access the information that we process about you and a number of additional pieces of information.

Right to Rectification

You have the right to have incorrect information about yourself corrected.

Right to Erasure

In very specific cases, you have the right to have information about you deleted before the time of our regular general deletion occurs.

Right to Restriction of Processing

In certain cases, you have the right to have the processing of your personal data restricted. If you are entitled to restriction of processing, we may only process the information - apart from storage - with your consent, or for the establishment, exercise or defense of legal claims, or to protect a person or important public interests. It is noted in this context that archival purposes are considered important public interests.

Right to Object

In certain cases, you have the right to object to our otherwise lawful processing of your personal data.

Read more about your rights at The Danish Data Protection Agency

Read below how we process your personal data in specific situations:

When you report a project to the Medicinal Research Ethics Committees

The Medicinal Research Ethics Committees (MREC) are obligated under the General Data Protection Regulation to inform you about which information the committee processes about you in connection with the handling of your case.

Information about the processing of personal data in NVK (PDF)

When you write to us

If you contact us via email, we will primarily receive information about your name and email address, as well as any information you may include in the email. We encourage everyone to use secure mail with NemID via borger.dk or virk.dk if the inquiry contains sensitive personal information. Information you send to us in an email is used solely to respond to your inquiry.

Find contact information

 

When you subscribe to the newsletter

You have the option to subscribe to our newsletter, where we inform about our work and activities. At registration, we ask for details about your email address and possibly name. These details are used exclusively in connection with the newsletter. If you no longer wish to receive the newsletter, you can unsubscribe by using the 'unsubscribe' link in the latest newsletter or by sending a message to us via borger.dk. Then your details will be deleted.

Services on social media

Our website may contain social media features such as LinkedIn and Vimeo videos, which have their own privacy policies. We therefore encourage you to read their terms and conditions as well as privacy policy carefully before you submit any personal information. Thus, you should be aware that these media may register your personal information when you click through to these services from this page.

Last updated 01-02-2024

Data Protection under the Ministry of Health

Data protection under the Ministry of Health involves the processing of personal data by the institutions of the Ministry of Health in connection with the tasks for which the institutions are responsible. You can find information about how the ministry and its institutions collect, handle, and protect your personal data in the ministry's data protection policy.

Read more about data protection under the Ministry of Health